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THANK YOU FOR YOUR PATIENCE
Sorry for the influx of posts. I've taken notes, journaled, recorded and videotaped nearly 4 year’s worth of this journey. It was more important to me to be "present" then to have an 'up to date' blog.
That said, I hope our experience helps people. I'm in the process of adding old posts, making previous private posts "public", and updating the blog. You may receive email updates about old posts. But I'll make sure each story is dated correctly.
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Thank you for all the encouragement and for joining us as we've navigated this uncharted territory.
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Katie Boer
Oct 1, 20201 min read
Dementia Diaries: My Mother's Eulogy
10/01/20 My mom passed away two months ago, after a nearly 4 year battle with Lewy Body Dementia. We laid her to rest in a beautiful and...
883 views1 comment
Katie Boer
Aug 19, 20201 min read
Dementia Diaries: Laying my mom to rest
Laid my mom to rest yesterday. 💔 Even for a journalist, delivering her eulogy was, without a doubt, the most difficult thing I’ve ever...
146 views2 comments
Katie Boer
Jul 31, 20201 min read
Dementia Diaries: Rest In Peace Mom
07/31/20 Carol Boer 04/08/48 - 07/29/20 It’s with a very heavy heart that I share of my mother’s passing. I was by her side, holding her...
149 views2 comments
Katie Boer
Jul 26, 20202 min read
Dementia Diaries: Thank you
07/26/20 — Just wanted to take a moment and say one thing: Thank you. So many of you have been following this journey with my mother and...
253 views1 comment
Katie Boer
Jul 26, 20204 min read
Dementia Diaries: Starvation & Salvation - WARNING GRAPHIC
07/25/20 --THESE PICTURES MAY BE HARD FOR SOME PEOPLE TO SEE. I’m just going to be honest about it. I’m mad at God. I’m religious. I...
2,081 views5 comments
Katie Boer
Jul 25, 20203 min read
Dementia Diaries: In these final hours
07/25/20 – Got the call I’d been long expecting today (I suppose “today“ is now “yesterday“). Not that call. The one just prior to that....
3,851 views2 comments
Katie Boer
Jul 22, 20204 min read
Dementia Diaries: Hospice, facility both warn "she's close"
07/22/20 -- It's weird walking into her facility lately. Literally every time I leave, I think to myself “This could very well be the...
136 views1 comment
Katie Boer
Jul 18, 20202 min read
Dementia Diaries: The Fight to Feed
7/18/20 -- I feel like I’m fighting a loosing battle. She barely eats. Sometimes it’ll take me nearly TWO HOURS to get her to consume 5...
74 views0 comments
Katie Boer
Jul 12, 20201 min read
Dementia Diaries: Caregiver Guilt
I remember sitting in this parking lot recording this live video like it was yesterday! I felt so guilty. I was so incredibly overwhelmed...
89 views1 comment
Katie Boer
Jul 8, 20201 min read
Dementia Diaries: Remember her this way
I haven't done a real update on my mom in a while. That's because she's loosing a lot of ground. Will she have 2 months? 2 weeks? I...
29 views0 comments
Katie Boer
Jul 8, 20202 min read
Dementia Diaries: WARNING GRAPHIC -- My heart is breaking, the Methadone effects
07/08/2020 Today I walked into my mom's room and almost threw up. The door was locked and I was joining her hospice nurse for our weekly,...
86 views1 comment
Katie Boer
Jul 7, 20201 min read
Dementia Diaries: "Tongue fluttering" a side effect of Methadone
07/07/20 My mom has been on Methadone for one week officially. I'm not a fan. She's become a vegetable. Hospice assures me that the...
41 views0 comments
Katie Boer
Jul 6, 20201 min read
Dementia Diaries: Half Birthdays
Today, July 6th, is one of my favorite days of the year. It’s my half birthday, which was always special to me growing up because: 1. I’m...
35 views1 comment
Katie Boer
Jun 30, 20202 min read
Dementia Diaries: Morphine to Methadone for pain management
Dementia Diaries: 6/30/20 I feel like pain management has been a bit of a roller coaster as of late. Transferring her in and out of her...
40 views1 comment
Katie Boer
Jun 2, 20202 min read
Dementia Diaries: Running the NYC Marathon for dementia, again!
06/03/20 -- Today is Global Running Day. Let it be clear, I still hate running. That said, running has become a great stress reliever and...
15 views0 comments
Katie Boer
Aug 26, 20192 min read
Dementia Diaries: My mom's "boyfriend"
8/26/19 -- For all the sadness surrounding dementia this really warms my heart. For the past few months my mom has talked a lot about her...
84 views1 comment
Katie Boer
May 12, 20191 min read
Dementia Diaries: Mother’s Day ‘93 vs today
#DementiaDiaries — 5/10/19 Mother’s Day 1993 vs today. A lot has changed. Today I was driving my mom and she said something so perfectly...
79 views1 comment
Katie Boer
May 4, 20191 min read
Dementia Diaries: Post-its
DementiaDiaries 5/4/19 — My mom has left me notes for years. Constantly encouraging me, pushing me, believing in me. This has been going...
45 views1 comment
Katie Boer
Mar 19, 20194 min read
Dementia Diaries -- Questions to ask before moving your loved one with dementia into a shared room
Before I moved my mom from her private room in memory care to a shared one with another resident I asked a lot of questions--at the top...
146 views1 comment
Katie Boer
Mar 19, 20195 min read
Dementia Diaries: Moving into a Shared Room
Dementia Diaries: 03/19/19 I knew when we moved her into Assisted Living (before she was even in Memory Care at the same facility) that...
83 views1 comment
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